Lord willing, I'm off to the hospital with Nathan in the morning. This admission for testing has been a long time in the making and it will be good to get it done. Nathan will have his MRI/MRS study (general anesthesia) in the morning (11 AM) and then after recovery will be admitted on the long term monitoring unit for a few days. We expect to be there until Friday and then he'll have his repeat overnight polysom study.
Please pray for Hutch and the kids while I am away... hard enough to be in the hospital, but to be two hours away is even more challenging. Pray especially for Andrew - given his Asperger's he really dislikes changes in his routine... and he has plenty of changes to deal with this week.
As odd as it sounds, we are praying for Nathan to have one (or more) of his "attacks" while we are in the hospital. His drop attacks and breathing difficulties happen so infrequently and randomly that it seems like this testing is like looking for a needle in a hay stack. But... we know that God is in the business of doing the seemingly impossible. We, and the doctors, are really hoping that this testing will lead to a diagnosis of what is wrong with Nathan and wisdom as to how to treat it.
I can't believe how far our little miracle boy has come! For those of you who don't know... Nathan was born at 34 weeks due to my having vasa previa (different than placenta previa). He spent 23 days in the NICU and required blood transfusions and oxygen. He came home on oxygen and with an oximeter and remained on the oxygen for 10 months. He struggled with low tone (and still does)... and was quite delayed in most areas... they didn't know if he would sit or walk or talk.... For the first four months he didn't focus and didn't track with his eyes. They thought perhaps he had cortical blindness. Now he sees just fine. He sits and walks and almost runs. He babbles and is working on coming up with a few words. He loves life and is nearly always smiling. We're so very grateful.....
I don't know if i will have computer access at the hospital, but if i do, i will post updates here.
Thank you for praying!
2 days ago